Quotesusan.d Were you tested for sleep apnea since you get it upon awakening? Not directed at me but maybe it will help the OP. I have sleep apnea and use a bi-pap. Also, my pulse rate is low and I often experience bradycardia during the day. Maybe dips down at night and precipitates the ectopics. Anyway, EP is aware of all of this and not recommending any changes in my medication regime ofby Mark - AFIBBERS FORUM
QuoteSueChef I cannot seem to attach a photo, so I’ll try to explain. Since yesterday, on and off, I felt these double heartbeats so I took a couple of Kardia readings. Kardia indicated sinus rhythm with supraventricular ectopics. My guess is that the ectopics are the double heartbeats I feel. Anyway, this morning when I woke up, I started having those ectopics again. Then my heart comes down aby Mark - AFIBBERS FORUM
Kinda but not necessarily that complicated and something a bit more in depth than say an “aFib for Dummmies.” Something that someone new to aFib might want to read, have on hand, and reference as they begin their journey. It might contain a lot of the same information that is provided on this forum but just catalogued, organized and all in place.by Mark - AFIBBERS FORUM
Good idea and sorta did that. Also looked at the list of books in the “resource” section on this forum many of which have been referenced in one post or another. But some are topic specific or philosophy specific. Was just wondering about one that would be both the most current reference type book that would cut across all the main areas of aFib.by Mark - AFIBBERS FORUM
If I could buy one generalized up to date informational (history, causes, treatments etc) book about aFib what would that be? I am leaning toward one of Larson’s books but wonder if they are too dated.by Mark - AFIBBERS FORUM
And besides that gives me something to read at 2-3 in the morning when I can’t sleep.by Mark - AFIBBERS FORUM
WOW! I don’t know where to begin because I don’t understand most of the technical issues that are happening to you at present. But I do understand your humanity. So, since I dont’t know where to begin let me end. Susan, I am so sorry for all that life is throwing at you. Utter BS to be sure. I hope your upcoming appointments will provide you some answers and will lead to healing treatment.by Mark - AFIBBERS FORUM
I would just like to say good luck to you, cornerbax. I hope everything goes well and wish you a speedy recovery.by Mark - AFIBBERS FORUM
Have always had the “athletic heart” thing and always a low heart rate that sometimes dips into the 40s. I think the mention of the beta blocker got thrown in by mistake but thanks for mentioning it. My EP is definitely aware of my low BPM status. I’ll look into the Taurine. I know I have worked with Magnesium in the past but don’t exactly recall why I discontinued. I always read the magnesiby Mark - AFIBBERS FORUM
Have been in a persistent NSR ventricular trigeminy pattern for several months with BPM in the low 60's and lower. Confirmed thru office ekg's as well as my Kardia. No real side effects other than a general feeling of being "unwell" particularly during quiet times. Prescribed Eliquis 5x2 and Flecainide 75x2. At the last meeting with EP we discussed possible change from fleby Mark - AFIBBERS FORUM
Happy Thanksgiving everyone. And, especially to all who make this forum possible and so very special.by Mark - AFIBBERS FORUM
Daisy thanks for your response. Cornerbax, i think that depending on their training and experience one cardiologist could be confident with one set of diagnostics while another could prefer a different set of diagnostics. And they both could be right. We are both treading water or in a sort of limbo. Asking if there are any additional diagnostics that would help clarify your diagnosis or helpby Mark - AFIBBERS FORUM
All my other readings were “normal” except one cited as upper limits of the normal range. As I mentioned, I’m not sure what the measurement error is from one echo to another. The interventionalist I consulted does not put much stock in echos and prefers a TEE to make his recommendations which makes a lot of sense at that decision making level. But I understand that TEEs probably can’t be givenby Mark - AFIBBERS FORUM
Quotecornerbax @Mark, thank you for your response, kind words and information. Do you have BOTH Severe Mitral Regurgitation and AFIB as well? If so, what is your EF and level of Regurgitation? I am dealing with an aortic valve vs mitral valve. i am not eligible for a TAVR. I do have aFib as well. LVEF in the 62/67 range. This was improved from my last echo which was in the mid 50by Mark - AFIBBERS FORUM
I am in a somewhat similar situation. Asymptomatic on both fronts and faced with the “let’s continue to monitor” and the “risk/reward” dilemma. Something akin to being caught between a rock and a hard place. You seem to have done a lot more research and “asking.” While I have read an article or two suggesting it’s better to have the heart surgery before the heart is in a more “critical” stateby Mark - AFIBBERS FORUM
QuoteWhyMe They are annoying as hell, not something one can just "ignore cause they are not Afib". Nah, I can't just ignore them, cause it feels like something is heavy in my chest, I feel lightheaded, short of breath, I feel like I don't want to do anything. This ain't life, I don't care if you call them Afib, PACs or Micky Mouse to be honest. Truly hope you wlllby Mark - AFIBBERS FORUM
Back in NSR but don’t know for how long. Mine ”seem” to be worse or occur when I am sedentary and activity can sometime quell them. Thanks for the feedback. I am new to the extended ectopics, don’t like ‘em, and my best wishes and condolences to all who have to deal with them.by Mark - AFIBBERS FORUM
I have been in the the Kardia “Supraventricular Ectopy” for about 24 hours now with resting bpm in the 50/60s. Would I likely be prescribed a calcium channel blocker?by Mark - AFIBBERS FORUM
Meant to use ECV for electro cardio version. My previous EP, who moved, accepted the Kardias without hesitation. We even did a few tele-health conferences based on them. You gave me lots of good ideas. Difficulty is getting a Dr appt that isn’t months in the future. Something we all face I’m sure. But I’ll work on that and use some of your suggestions as talking points. I like my current EP bby Mark - AFIBBERS FORUM
Paroxysmal Afib, approximately 6+ years, 2 CCV's-- one index and one along the way, non-ablated, prescribed flecainide & eliquis, have used extra flea as a PIP on occasion with good results. For the past several weeks I have been experiencing what Kardia determines to be NSR with Supraventricular Ectopy Drop in and out but mostly in for a good portion of the day. Many are determined toby Mark - AFIBBERS FORUM
It is my understanding that Kardia will not give you are reading of “aFib ” but will only give you a reading of “possible aFib.” Maybe not a technically important distinction and one made for liability issues or whatever but one that is still made—I think. Maybe the subscription model makes a definitive statement of “aFib”vs possible “aFib.” I don’t know. Is it then fair to say that if Kardiaby Mark - AFIBBERS FORUM
I’m kicking the can down the road in a very similar situation. Carey’s advice is solid. We’re all unique and special. The good news is that valve replacement has come a long way, is pretty routine these days, and has a high degree of success. Your wife is in your good hands, Poppino. Wishing you the best of luck.by Mark - AFIBBERS FORUM
$125 for hemorrhoid cream? Now that’s a real pain in the butt!by Mark - AFIBBERS FORUM
Congrats also! Best of luck moving forward.by Mark - AFIBBERS FORUM
I don’t know what the true population average is for those afflicted with AF, but it must be close to 60% will come to learn that the disease is progressive and will begin to act up after a while.” I tried to do some research on this but really didn’t get very far. Maybe others know how. Is there any hard data about the % of aFibers for whom medication ceases to work, impact on their lives,by Mark - AFIBBERS FORUM
Condolences on the loss of your brother. Your cousin seems to be on the high end or even exceeds dosage guidelines for Flecainide. Carey did not comment on this so maybe it I am mistaken. Maybe the higher dosage, 400mg, is warranted during emergency-like situations. Take care, my friend.by Mark - AFIBBERS FORUM
Great news. Best wishes for a speedy and successful recovery.by Mark - AFIBBERS FORUM
b]Today (5/9/2023) primary care said fine to get off Dilitiazem but to stay on blood thinners - scaring the bejezus out of me regarding blood clots. Perhaps it is a bit unfair for me to comment as I have never experienced any side effects from Eliquis or any of the other rate/rhythm meds that I have been prescribed-at least that I know of. I commend you for your “non-med” approach. Somethinby Mark - AFIBBERS FORUM