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Hi Steve, Thats the night and day difference between true elites who know what they are doing with persistent AFIB and many others who are doing ablations who are trying to sort out their philosophy and methodology still. No one in their right mind and who is truly experienced in the most difficult cases thinks that a simple PVI is enough to consistently put the lid on persistent AFIB. Shanby Shannon - AFIBBERS FORUM
tsco, r Natale did your procedure many years ago as I understand it before if progressed to AFIB from the SVT/right flutter you had suffered with earlier and his was the second or third ablation you had ( He did this while still at CC correct?) As I understand your story that ablation held a good long while until AFIB itself started to manifest. What has been learned over the last 5 yearsby Shannon - AFIBBERS FORUM
That book was not about a U of M doctor is was about a Johns Hopkins EP and more specifically his trainee he allowed to do a procedure on one of our long time ago readers name Pam. The trainee who Pam and her husband were totally unaware of that actually attempted her ablation, was assigned in the teaching hospital setting, as is often the case, but the head EP there who was and still is directorby Shannon - AFIBBERS FORUM
Ritva, Make very sure you only go to an EP who is very skilled at doing these follow up procedures and who is good at persistent AFIB ablation as well ( since this type will see a large number of atypical flutter cases too). The 90% cure rates you quote are for typical right atrial CTI (cavotricuspid) Flutter and that is a very different kettle of fish that atypical flutter which is signifiby Shannon - AFIBBERS FORUM
That's all great Duke, thanks for the link I read that as well and much progress is being made with various stem cell therapies. Both those of is out there who are good candidates for an expert ablation process and especially those who are set to get it fine with a top tier EP, please don't make the mistake of projecting such potentially promising news as being a substitute for said ablby Shannon - AFIBBERS FORUM
Super news Iatrogenia! It pays to go to very experienced EPs trained by the best. One big metric in making the choice, if you just can't go to Dr Natale of one of the other true elites for example, is to make sure your EP not only does a bare minimum of 200 ablations a year but that he or she ONLY does AFIB/FLutter with possibly some VT ablations too where they overlap, But don'tby Shannon - AFIBBERS FORUM
Could have been a short run of Tachycardia/flutter Nancy and quite possibly stimulated by some eletrolyte imbalance, dehydration or high stress period as noted above. When was your ablation again? We have so many Nancy's now I lose track . If you are still in the blanking period after an ablation, it could be just that as additional ablation lesions formation and maturation take place. If iby Shannon - AFIBBERS FORUM
The Exatest is a good Intracellular electrolyte test, but be careful in using the word 'cure' in regard to electrolyte balance. It's certainly a key step often times in successful management of the beast for many peoe, especially is caught early as you noted and well before much fibrosis and structural remodeling has set in. But the real origins of AFIB are likely a few steps prby Shannon - AFIBBERS FORUM
No fish oil in moderate doses is okay with Xeralto David. Just don't go hog wild with the 5 to 8 gram doses while on any official blood thinner without very close early monitoring to insure your blood thinning isn't getting too robust. Shannonby Shannon - AFIBBERS FORUM
No fish oil in moderate doses is okay with Xeralto David. Just don't go hog wild with the 5 to 8 gram doses while on any official blood thinner without very close early monitoring to insure your blood thinning isn't getting too robust. Shannonby Shannon - AFIBBERS FORUM
Below is a handy link to a list of just the most popular drug classes that are known magnesium wasters. If anyone here has to take any of these drugs for a period of time, be sure to ratchet up your magnesium intake to just below bowel tolerance. As Jackie noted below, this list is only a general good start, many other drugs also do a number on magnesium stores. Magnesium depleting drugs Shby Shannon - AFIBBERS FORUM
Hi Anti-AFIB, DenverFox is a long timer here who, as noted in his post above, had his 24/7 persistent AFIB put to sleep in a single ablation by Dr Natale in what must have been 2005, is that the right year DenverFox? Shannonby Shannon - AFIBBERS FORUM
Smackman. Your DOC is nuts trying to push your LDL to 70, with your total Cholesterol at 184 already! An LDL of 115 is perfectly fine as a number... but as with any total number like that its usefulness is limited. Keep in mind that 50% of all people who drop dead from a sudden heart attack have perfectly optimal cholesterol numbers bases on the guidelines. When 50% of the people fail yourby Shannon - AFIBBERS FORUM
Definitely add the D-Mannose Smackman! Shannonby Shannon - AFIBBERS FORUM
Good news Gary, Im so glad to hear you are on the other side of the fence now after such a long slug with the beast. You've now taken by far the biggest step toward real freedom from AFIB/Flutter and hopefully are done now already, but even it you still have one touch up left at some point you can take heart that it will be significantly easier going that even the relatively easy index prby Shannon - AFIBBERS FORUM
Hi Ralph Mass General has some good people. Moussa Mansour is head of the AF ablation program there and is very good. Jeremy Ruskin is a well known leader there as well. They do a good volume of work and are definitely not light weights. As a teaching hospital associated with prestigious Harvard Medical School, just be sure that your lead EP such a Moussa will be the only one actually working inby Shannon - AFIBBERS FORUM
Its fine to take magnesium 4 hours after Cipro Smackman. I wouldn't stop it. Take care, Shannonby Shannon - AFIBBERS FORUM
Hi PH, Glad to hear all is ship shape after your Natale ablation. Regarding your Cholestrol, it is an absolute travesty that any Doc would try to push your Total Cjolesterol levels to 170 and below!! Using 200 as the cut off point for 'normal' Cholesterol levels is purely a Big Pharma driven marketing strategy that flies in the face of what is really known about lipid metabolismby Shannon - AFIBBERS FORUM
You are welcome David, I strongly second researchers advise to at least seek out a second opinion with Dr Sabine Ernst. Of all the Ablationist in the UK, I hear the most good feedback about her over everyone else from some very elite Ablationist here in the US and a couple in Europe that I am in contact with. Dr Lambiase might be okay, but I have zero info or feedback on his long term trackby Shannon - AFIBBERS FORUM
Hi David, Very sorry to hear of your TIA, the gold standard for determining if you had one, and whether or not it was from a likely embolic origin around the LAA or perhaps from a cerebral artery spasm, is via a combination MRI and MRA (magnetic resonance angiography done with gandolinum contrast dye). They should find evidence of a small lesion in the brain if it was even a small CVA (cerebraby Shannon - AFIBBERS FORUM
Hi Mark, Yes we are all pretty much act like that, its one of the tricks this lousy condition plays on the mind such that when you are in AFIB you'll do anything, up to and including selling your mother, to get back to NSR and yet once back in NSR for half an hour all the urgency evaporates and the whole thing immediately gets relegated to the distant back burner of priorities again. Thatby Shannon - AFIBBERS FORUM
Roughly 14,500 Euros last I checked Mark. Could be slightly higher now. Others here can give a more firm up to date price. Shannonby Shannon - AFIBBERS FORUM
Good to hear Randy, Has it been six months already? Time flies when you are having fun, eh?! Keep up the good work staying healthy and best wishes on continued NSR into the distant future. Shannonby Shannon - AFIBBERS FORUM
Hi Mark, Yes flutter like yours will not respond to drugs so don't let anyone in an ER try to use the Adenosine challenge on you again as some ER docs will want to do in order to rule in or out SVT versus Flutter. You know its flutter so can spare them and yourself the Adenosine 'mini-death' scene which is not particularly fun as you well know too from your mention of it abovby Shannon - AFIBBERS FORUM
McHale, Im not a CPAP expert by any means, but could your machine not be the right one or properly calibrated for your manifestation of OSA? If you can confirm that trend of better BP, HR and oxygen saturation off the machine compared to on then clearly something is out of whack. It could be that your sleep apnea has improved too in the absence of AFIB?? As such, perhaps you need to have yoby Shannon - AFIBBERS FORUM
Thanks for the clarification Bob, That sounds much more like it and the good news is his reputation is still intact. I feel much hearing that he wasn't really making such outlandish claims. Best wishes on your ablation when it comes about. Please keep us up to date as things move along and ask any questions as they arise. Take care, Shannonby Shannon - AFIBBERS FORUM
Hi Mark, So sorry to hear of your recent conversion back to AFIB from happy NSR. Its always a big disappointment when that happens. However, you came back to the right place with the right idea to make your absence from NSR as short lived as possible. One question, are you now in persistent AFIB? Also, have you ever adopted The Strategy protocol for magnesium, potassium and other heart quieby Shannon - AFIBBERS FORUM
Sounds like George has it sorted out Nel, and welcome back, good to hear from you again. Check your browser password save function as George suggested and make sure the password is saved in your browser and see if that works? Take care, Shannonby Shannon - AFIBBERS FORUM
Thanks for the update KenKY. Sounds good and as expected after the index ablation for an extensive persistent AFIB case. The mild fever will subside very soon and take some Motrin as well the next couple days to help with the overall inflammation as well. Best wishes and keep us posted. Cheers! Shannonby Shannon - AFIBBERS FORUM
Hi Bob, Regarding your AFIB activity it does sound like you are in a good window still for a likely PVAI style ablation to have a good chance for success with one procedure with skilled hands doing the ablation (and not a trainee actually doing your procedure under the name and guidance of the more experienced EP). But it does sound like you might be at the point where some additional non-Pby Shannon - AFIBBERS FORUM