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Hi Jean, Glad to hear things are settling down a bit, one factor in your longer recovery is likely not only from the very extensive ablation you required with the more advanced fibrosis indicated on your ablation report but also from the long duration of the procedure at 7 hours which is a very long time these days for even a big ablation like yours. As we discussed on the phone, it was appareby Shannon - AFIBBERS FORUM
Hi Nancy, Don't worry about the weight, it's in a perfectly normal range the week or so after an ablation, you are fine. Just take it easy, get some good quality protein and fats including omega 3 oil too in your diet, try building up slowly to a tablespoon or two of extra virgin coconut oil a day too, you need all the good quality nutrition you can get during the healing process.by Shannon - AFIBBERS FORUM
You have to tell us your reading for each one before I can comment Nancy, also include the unit value for each and the published reference range for each. Then I can discuss it with you accurately. What is your Vitamin D3 level in blood? You don't need much if any calcium unless you have true hypocalcemia which isn't that common in the presence or optimal levels of magnesium, Vitaminby Shannon - AFIBBERS FORUM
Great review Deluge (I get the play on words with your name ... Just be glad you got it done, but your is a good learning lesson too as you were clearly knocking on persistent AFIB's door and with growing to a size 48 LA that is not the direction you want to go. Many while they are still paroxysmal think they have plenty of time to wait it out but that can be a delimma as it's veryby Shannon - AFIBBERS FORUM
Mostly the bloating post ablation is from The irrigated catheter water dumped inside your heart and body, it can take a while to get rid of it, plus some minor to modest ANP reduction from the burning on the tissue of the left and right atrial endothelial lining where special cells that produce ANP get knocked out of action temporarily until new one grow back. That can mess with your sodium/potby Shannon - AFIBBERS FORUM
Hi Erich. Good question, a perfect ablation will fix your heart and allow drinking like a fish ... for a while. But AFIB is a progressive condition and there is strong evidence that the metabolic changes and processes that led to you being more prone to AFIB to begin with continue on even after a successful ablation. Think of an ablation as setting up a barrier against existing 'confirmedby Shannon - AFIBBERS FORUM
Hi Debbie, Please read this monograph of Propafenone info and side effects. Its clear about half way down that abdominal pain is one of the issues and is most often connected with the liver (gallbladder) area which is consistent with your right sided pain. I doubt it is pancreatic unless you are getting a strange referred pain that far away from your pancreas. http://rxoutreach.org/wp-contentby Shannon - AFIBBERS FORUM
I would focus hard on optimizing the drugs with just the kind of supplemental effort GeorgeN recommended Dirk. I didn't catch where it is you live but if its in UK or EU then I too would make Bordeaux my top priority if and when the drugs plus good diet and supplements are not able to hold down the fort. You can get bye a while longer on two one hour or less episodes a month, but that isby Shannon - AFIBBERS FORUM
Really sorry as well to hear of the primary progressive MS JohnS, you've had more than your share of tough breaks here lately! I certainly hope you don't have to wait until th MS flares up enough to kick in full NHS coverage and this only them can you swing a better quality ablationist in a large volume center in the UK, if and when the drugs start to fade as the most often do at some pby Shannon - AFIBBERS FORUM
The hormone that gets out of whack temporarily Nancy is atrial natriuretic peptide or ANP, it is produced in the endothelial lining of the left and tight atrium including in both left and right appendages. Some of these pacing cells get zapped along with those producing some ANP during an ablation and can take a variable amount of time to grow back and start producing more ANP again. ANP is in chby Shannon - AFIBBERS FORUM
Good point John21, I and many others here have learned first hand how synergistic and valuable combining the benefits of a good diet and proper repletion of heart friendly nutrients and other supplements with an expert ablation process by the very same EP in this study can be at realizing a fantastic outcome even from very sypmtomatic and challenging persistent AFIB after 16 years of gradual pby Shannon - AFIBBERS FORUM
The thing Ive noticed about many EP's, even very good ones, is that their strength isn't always in the nuances of trigger management either before or after an ablation. They generally know about the big triggers like alcohol but most often they give general rules of thumb in this regard that lacks the real world nuance of experience that those of us who have been through the mill and knby Shannon - AFIBBERS FORUM
I promised to get Lynn some information regarding Dr Natale's stats for ablations late last week while I was still in Austin at the EP Live 2014 conference. And Lynn, you should be hearing from his office soon as well. In addition to the one study I posted last week in Lynn's original thread on the matter, I made mention of the latest abstract that was presented at the American Heartby Shannon - AFIBBERS FORUM
HI JohnS, So sorry to hear of your disaster ablation, can you share some more about that, what location etc. Just hang with the drugs as long as they do last could be 6 months and could be 6 years ... as long as they keep you quiet and you can tolerate them. Also add int he Strategy supplements to as a possible aid in keeing the heart quieter align with the drugs which can deplete vital storesby Shannon - AFIBBERS FORUM
Dennis is right Barb, Of course you 'can' have a drink and some here do so frequently after an ablation and seem to get away with it ... for a while anyway. Occasionally is probably okay but dont go for more than one at a time and only if and when you really want one. It is never a plus for your heart as alcohol is cardio-toxic, but it is apart of many peoples daily cultural experienby Shannon - AFIBBERS FORUM
Welcome home Smackman. What you describe as a 'jittery' feeling still may well be from the low adrenal function we discussed that I suspect is a significant factor in your experience overall with the tendency for high anxiety and such, and after a surgery process like this it can take a bit longer for a low performing adrenal system to rebound fully from the physiological stress youby Shannon - AFIBBERS FORUM
Good the hear Erich, sounds like you are on the right track but just don't be bamboozled by your Docs into taking minuscule magnesium dose that will be to small to do much good for an afibber im unless you have a serious kidney disease. Or unless you have a rare reaction like TomB which typically goes hand on Gand with a core adrenal dysfunction to one degree or another. Not to be too nitby Shannon - AFIBBERS FORUM
Hi Nel, About 25% of people do reasonably well on Levo or Synthroid which us synthetic T4 only, but rarely are they really well from a thyroid point of view, but some, such as yourself, manage pretty well on it and its often those with less pronounced and more minor hypo as your modest 75mg dose implies. While adding FT3 and FT4 to the T4, T3 and TSH would given ore insight into your thyroidby Shannon - AFIBBERS FORUM
Fran, this is a high specialize kind of ablation for certain types of arrhythmia located near the VOM (Vein of Marshall) its not a candidate for overthrowing regular catheter ablation by any means, just another tool for addressing some stubborn hard to get to trigger areas. I've seen videos of two such procedures now including one shown at Boston AFIB in a Orlando two months ago. It is interby Shannon - AFIBBERS FORUM
It sounds good to me George, Erich clearly has a Vagal pattern going, at least in part and it's definitely worth a try. Erich follow up with George's Resistent starch threads started in the last month. Shannonby Shannon - AFIBBERS FORUM
Erich , cut the calcium, you dont need it supplementally unless you have a rare hypocalcemia condition which I doubt serious you have and no one has found yet. Also, since you and Joey are both so young, remember its a double edge sword in that absolutely you have a great chance of getting on top of this early, but also the very fact that AFIB has intruded into your life strongly suggests thatby Shannon - AFIBBERS FORUM
Next time your Doc asks why you want Free T3 and Free T4 tell him that Free T3 is the final form of the active thyroid hormone that can actually bind to cells and cause actual thyroid function in the body. Total T3 doesn't not always track perfectly with Free T3, and the same goes with Total T4 and Free T4. While T4 is only a storage form of the thyroid hormone and has to be converted by enzby Shannon - AFIBBERS FORUM
Its the alcohol as Sam suggested, the Flec is just along for the ride in this case. Alcohol is exhibit 'A' on the known trigger list for AFIB and has cardio-toxic properties for myocytes. Best to avoid entirely is you are prone to AFIB or minimize as much as possible. Some can get away with it for a long while but its an added risk regardless. Shannonby Shannon - AFIBBERS FORUM
Hi Barb, Your heart of fine so no worries. The fibrosis is not that uncommon in people our age, especially women. Your LVEF Left ventricular ejection fraction is still in the normal range and is good so don't fret over this, its just that it adds more of an emphasis on getting your TEE and, if need be after the results, continuing on with the anti-coagulation program. Its not a real woby Shannon - AFIBBERS FORUM
Good work Joey, cases like yours and Erichs are very often the very best examples of catching the horse before it leaves the barn and is why myself, Jackie, Hans, George an others here do strongly recommend to everyone to first start with the kind of dedication you am have shown to a thorough dietary and nutritional supplement program as defined on this website. That can be the starting and finisby Shannon - AFIBBERS FORUM
Louise, when you talk to your doc politely but strongly insist on getting the Free T3 and Free T4 thryiod hormone tests along with the TSH. Those first two are most important. You should have at least one screening TPO antibody and Thyro-Globulin antibody test as well to rule in or out Hashimotos autoimmune thyroiditis. You can have him include total T3 and total T4 as well for the complete pby Shannon - AFIBBERS FORUM
Congrats Alex, I definitely would go with your last sentence above, sounds like you are doing wonderfully well in the AFIB and overall health front it. If your heart is having short runs of what feels like irregular beats it may well just be some ectopic activity like PACs or PVCs. Since you know the mineral/nutrient protocols just try bumping up the potassium when that happens using potassiumby Shannon - GENERAL HEALTH FORUM
Yeah Liz sounds more like you probably developed a sensitivity to something in the Iodoral tablet preparation over time. It can happen, obviously ... Take care, Shannonby Shannon - AFIBBERS FORUM
Hi Louise and Liz, Yes Liz story can indeed happen , though thankfully that manifestation is rather rare, but it's why I said to make sure and start at just a half tablets and go slow.. Like Liz said even slower and longer at the half tablet dose if you get anything like such a reaction. What Liz experience could either be a herxheimer reaction from detoxing bromine cellular binding, or aby Shannon - AFIBBERS FORUM
Hi Barb, That was quick, I meet Dr Barrett last week and told him about the afibbers gang he was following up on for Dr N. He's a nice fellow and for sure there would be no issue as soon as he heard your request as you now see his response. yes its roughly a 40% to 50% chance of being able to stop the blood thinner but as we discussed over the phone right after your ablation and readinby Shannon - AFIBBERS FORUM